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Steering Committee (SC)

Two open positions on Euromyositis committee

Dear all

On behalf of the Euromyositis Registry, we would like to invite applications for 2 newly created positions posts on the Euromyositis committee.

1. Neurology representative

2. Non-European representative

We feel it is important to have these new posts in order to make the committee more representative of current Euromyositis registry users and we would value contributions from these areas. The commitments are not onerous and would involve participating in an hour teleconference every three months and ideally participation at the yearly MYONET meeting. More information about the Registry can be found at https://euromyositis.eu/.

Interested applicants should forward on a short one page CV and the statement of no more than 200 words why they would be interested in applying for the post, to Dr Hector Chinoy, Euromyositis Chair, at hector.chinoy@manchester.ac.uk. Deadline for application: July 31st 2014.

The Steering Committee (SC)

is in charge of the EUROMYOSITIS registry, concerning the quality, safety and how to use it.

Changes or amendments to the EUROMYOSITIS registry shall be decided by the Steering committee.

  • New users of the EUROMYOSITIS registry should be decided by the SC.
  • New projects where data from the register will be used should be approved by the Steering committee.
  • A chair-person is appointed for 1 year to act as a day-to-day contact-person to ZiteLab in case of any questions about change in system or approval of new hospitals or data extraction.
Members of SC:

Chair-person:

  • Dr. Hector Chinoy, M.D.,  Ph.D.,  The University of Manchester, 2nd floor, Stopford Building, Oxford Road, Manchester, M13 9PT, UK. Email: hector.chinoy@manchester.ac.uk

Members:

  • Prof. Ingrid Lundberg,  M.D., Ph.D., Professor, Department of Medicine, Rheumatology Unit, Karolinska University Hospital, Solna, SE- 171 76 Stockholm, Sweden, Email: Ingrid.Lundberg@ki.se.
  • Dr. Lucy Wedderburn, M.D., Ph.D., Rheumatology Unit, Institute of Child Health, UCL 30 Guilford Street, London  WC1N 1EH, UK. E-mail : l.wedderburn@ich.ucl.ac.uk
  • Prof. Jiri Vencovsky, M.D., Ph.D., Institute of Rheumatology, Na Slupi 4, 12850 Praha 2, Czech Republic. E-mail: venc@revma.cz.
  • Dr. Louise Diederichsen (from April 2011), M.D., Ph.D., Department of Rheumatology, Odense University Hospital, Sdr. Boulevard 29, DK- 5000 Odense, Denmark, representative from DANBIO. Email: louise.diederichsen@dadlnet.dk.
  • Patient representative: Paula Oakley. E-mail: msg.paulaoakley@gmail.com
  • ZiteLab administrator: Niels Steen Krogh, ZiteLab ApS, Refshalevej 110a, DK – 1432, København, Denmark.  E-mail: nielssteenkrogh@zitelab.dk.

 

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