General information

-about Resources, Links, Projects and Dataextraction

Resources

Ethics committee template (to be added)

Example of agreement between ZiteLabs and institution (to be added)

Data sharing agreement and material transfer agreement (to be added)

The database contains a glossary that should help to understand the definitions of the individual items and that also provides guidance how to use tools that may be unfamiliar to first users. We encourage using information from glossary frequently and repeatedly in order to ascertain that a similar approach is taken in assessment of patients across centres.

Publication policies:

All contributors to the database should be recognized in the acknowledgement of publications from the register.

Links

Autocure web page

EuMyoNet web page

IMACS web page

Projects

Directly related to myositis registry:

Myositis projects in Europe:

Either links or short description:

Prometheus (http://clinicaltrials.gov/ct2/show/NCT00651040?term=myositis+methotrexate&rank=1),

The International Myositis Classification criteria project (IMCCP) information on the IMACS website

GWAS, smoking and autoantibodies, Pregnancy, IFN, modification of Jo-1, , Autoantibodies....

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Data extraction

Data may be extracted on request to ZiteLab:

Hospital data - may be delivered on request from hospital.

National data – may be delivered on request from a national coordinator for hospitals in the country.

International data – will be delivered after the request is approved by Steering committee.

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